You have been told it is just weight. Just diet. Just effort.For millions of women with lipedema, that is not just wrong. It is decades of unnecessary suffering.In this episode of Bendy Bodies, I sit down with Kasi Grosvenor and Jesse Cochrane from the Lipedema Foundation to pull back the c…
Most people with EDS or HSD have been told to "exercise more," "eat better," and "sleep on a schedule," usually by someone who has never tried to do any of those things in a hypermobile, pain-flaring, dysautonomic body.This episode is different.Dr. Linda Bluestein and Dr. Dacre Knight break…
What if being too flexible is exactly what makes surgery fail? And what if your doctor thinks your shoulder is fine because you can lift your arm to 90 degrees, not realizing that for you, 90 degrees might as well be a frozen joint?Your joints bend farther than most. But when something goes w…
In this "MythBusters" edition of the Bendy Bodies Podcast, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight tackle the persistent misconceptions surrounding Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and their frequent companions, Postural Orthostatic Tachycard…
Dr. Jessica Eccles, an award-winning neurodevelopmental psychiatrist, returns for a deep dive into the profound connections between hypermobility, variant connective tissue, and the neurodivergent brain.In this conversation, she explores why individuals with bendy bodies are significantly mor…
Spinal cerebral spinal fluid (CSF) leaks are significantly more common in those with connective tissue disorders than many realize, yet patients often suffer for years before finding the right diagnosis.In this episode, neuroradiologist Dr. Andrew Callen joins Dr. Linda Bluestein and co-host …
In this essential conversation, Dr. Linda Bluestein welcomes pelvic health physical therapist and dance science expert Dr. Brooke Winder to explore the intersection of pelvic health, performance, and joint hypermobility.Dr. Winder shares her professional insights and personal history with uri…
In this enlightening episode, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight sit down with nationally recognized expert Dr. Anne Maitland to explore a revolutionary perspective on allergic and immune-mediated disorders.Dr. Maitland unpacks the "Epithelial Barrier Hypothesis," expl…
In this listener-inspired episode, Dr. Linda Bluestein is joined by producer Aron from Human Content to address the fundamental truths she wishes EDS patients knew about hypermobility. Together, they explore the "invisible" yet highly visible nature of Ehlers-Danlos syndromes (EDS) and hypermobilit…
In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome. Dr. Singman shares a vital triage guide for navigat…
Severe back pain that refuses to respond to treatment may sometimes have a far more serious cause than most people realize. In this episode of Bendy Bodies, Dr. Linda Bluestein speaks with Dr. Forest Tennant, a longtime physician and researcher who has spent decades studying adhesive arachnoiditis,…
When living with Ehlers-Danlos Syndrome and hypermobility disorders, medications alone rarely resolve all the symptoms. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens, integrative medicine specialist and Associate Medical Director of the UVA Health EDS and Hyperm…
There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a pract…
POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome and quietly derail treatment progress. Inspired by …
Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ran…
Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation.In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Rachel Rubin, a board-certified urolo…
What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home?In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center…
Mast Cell Activation Syndrome is one of the most misunderstood, and underrecognized, conditions in modern medicine. In this episode, Dr. Linda Bluestein is joined by Dr. Lawrence Afrin, one of the world’s leading experts on mast cell disease, to unpack why MCAS is so often missed, why tryptase alon…
In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when every…
In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions.They unpack the neuroscience of…
What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome)…
In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein brea…
In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes)…
In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome). Their conversation tackles one of the most misunderstood vascular conditions in complex patients. From tre…