Reviews

Thank you Dr Bluestein for sharing your wealth of knowledge. After my hEDS diagnosis I found few resources or people talking about what can be done. Hearing you and your guests have made me feel less alone and help me navigate what is going on with my body.

Patients living with hypermobility, dysautonomia, and mast cell activation syndrome are some of the most complex and challenging to care for — and trustworthy, evidence-based information can be hard to find. The Bendy Bodies Podcast stands out as a reliable source of clear, up-to-date insights from clinicians, researchers, and, importantly, patients themselves who are navigating this daily battle. Led by Dr. Linda Bluestein — a physician who personally lives with hypermobility — the podcast brings a unique, compassionate, and deeply informed perspective that you won’t find elsewhere. I highly recommend it to anyone in patient care, as well as to people living with these conditions and their loved ones. This podcast is an invaluable resource and a reminder that no one in this community is alone.

I truly appreciate all you do for the Bendy community. You find the best resources and we get quality information from people who know EDS. And you have inspired me to continue my education and earn my DNP so I can provide primary care to zebras. Thank you!

Thank you so much for creating this information podcast for EDS. I have notice a few podcast stop after only 1 episode. Clinics around me have stopped their EDS clinics. My rheumatologist told me I “most likely” have it. My daughter and grandson were diagnosed a year ago. I did my research and can definitely see it in my family line. My daughter has Arnold Chiari Malformation, my grandmother had a hunch back and clubfoot. Nephews who are tall and skinny with long fingers. Brother who was able to stretch his eyelids, as children we competed on bending our fingers to our wrists, sitting with our joints in positions that look very uncomfortable to other people. I’m 54 now and am not as hyper mobile as I was in my younger years, but notice a lot of bruising, the scar tissue build up, thin skin, joints dislocating often. My pinky finger keeps dislocation while I’m typing this. I am more concerned now because I have the inappropriate tachycardia and know that my body is being flooded with cortisol. I have tendinitis in my elbow. Diagnosed with both tennis and golfer elbows. Just so much going on with my body and there are no drs around that want anything to do with it. I have been told by Pain Management that the focus to treat it is just to protect the joints and lots of physical therapy. My rheumatologist told me to get a diagnosis I need to see a geneticist. All the big hospitals around UTMB and Baylor have ended their clinics. I worked for orthopedics who say they will not manage it anymore. I’m confused on how it’s barely becoming known but at the same time medical professionals don’t want to treat it. We need more awareness and a good treatment plan. I would like to a standard diagnostic criteria, please keep your program going. The people who are finally starting to connect the dots and look into this as a cause of their symptoms and have no one around to support them and help them get answers NEED THIS PODCAST. We need answers. We need information. We need our voices heard. Thank you.

Thank you so much for all that you do. I always thought there was something wrong with me. I would for sports and school. I would get minor injuries very easily. I was always given corrective feedback for my posture or for not locking my knees. I was only given a diagnosis at the age of 56. I am now exploring what seemed like very oddallergy symptoms over the years, as well as digestive ones. Thanks to your podcast. I feel like I have the beginnings of a roadmap. As I am aging, I find that I have discomfort and joints all over my body, but now I understand why. I also have ADHD so I’m relieved to find that all of these things are somehow connected. I feel a little bit less like a zebra thanks to you. Kathryn

Thank you, Dr. Bluestein! You’ve been a huge help in navigating life.

This podcast is incredibly informative and helpful to the Hypermobile audience and beyond. The pelvic floor and Testosterone episodes were relevant and so chock full of nuggets, I had to pause several times to properly absorb it all. I love recommending this podcast to my dancer students as well as my Pilates clients alike. Thank you and keep going!

Having to navigate a new diagnosis of EDS in the UK NHS is pretty diabolical as they don’t recognise it well enough yet. I’m glad for the services provided for the symptoms but as the clinicians are not clued up, they can’t educate me as someone who has it. Bendy bodies fills that void. It provides professional advice at multiple levels, ensuring it’s technical and bough for practitioners to learn how best to navigate this condition for/with their patients, with plenty of signposting for further info and resources. However, you also provide evidence based, comprehensive information for those with the condition in laymen’s terms. Not condescending to them, but giving them an understanding of their bodies in terminology that makes sense to everyone. You step over that academic/professional pomposity that so many have, to do what most meant to, to help those who need it. Excellent podcast. Fantastic presenter. Amazing resource for the likes of me, floating in a sea of chronic illness I now understand a little better, how to navigate. 👌🦓❤️

The subject matter is relevant, the content is peer-reviewed, and the guests are reputable. Not sure you can ask for more in the EDS society! Doing a deep dive into these episodes is an effective method to really learning about how to care for your EDS, which is so much more than a bendy body as we all know. Love how this brings to light issues and relevant concerns beyond the Beighton score.

Really love the wide range of guests this podcasts hosts- it has been really valuable for gaining different perspectives and insights. The information is superbly helpful, and its so wonderful that there is a consolidated bank of information that we can look to!

I really appreciate this podcast as someone diagnosed with the trifecta!

I feel so seen! Having just received an EDS & MCAS diagnosis following a MALS diagnosis at age 37, everything I’ve been experiencing is finally starting to make sense. Thank you for educating us on why!

The Bendie Bodies Podcast has been a lifesaver in navigating complex medical challenges. The expert insights and practical tips are invaluable, empowering me to better support my loved one and advocate effectively. Thank you for creating such a thoughtful and supportive resource for the bendie community!

So grateful this podcast for EDS patients. Access to this type of information from different experts is so helpful and inspiring!

I have been a long time Bendy Bodies listener and absolutely love this podcast. It’s an amazing resource for anyone who might be struggling with hypermobility - there is something to learn in every episode. As someone managing hEDS/MCAS/POTS, I love the wide range of topics the podcast covers and the depth of information. It’s been so helpful for me! Dr. Bluestein’s solo episodes are also incredibly valuable as is her perspective as a medical professional.

I am incredibly thankful to have found the Bendy Bodies Podcast! As both a mobility specialist working with hypermobile individuals and someone living with hEDS, this podcast has been an invaluable resource. The information shared by Dr. Bluestein and her expert guests has provided me with practical tools to better support my bendy clients and confidently refer out when necessary. On a personal level, listening to this podcast has been a deeply validating experience in a world where medical gaslighting is all too common. I highly recommend Bendy Bodies to anyone seeking a deeper understanding of hEDS and HSD—whether for their own medical journey or to better serve clients and patients. Ashley Rogers, FRCms

As a Doctor of Physical Therapy, I enjoy listening to this informative podcast for all sorts of hypermobility-related topics. I am a hypermobile individual with multiple autoimmune disorders, and I specialize in treating hypermobility and EDS. It’s great to hear current research from MDs who are leaders in this field. I also enjoy the dance related episodes as I treat many aerialists. Thank you for providing this high quality, evidence based content!

The Bendy Bodies podcast has empowered and encouraged me as a patient and professional in more ways than I can describe! Thank you for your generosity, compassion, and hard work in bringing so much visibility to connective tissue disorders!

This podcast is a lifesaver for me as a mom navigating my teenage daughter’s hypermobility and all the related conditions. Thank you for putting this information together and helping people live their fullest lives.

This podcast is a wonderful resource and Dr. Bluestein is a wonderful presenter. I wish it had been available thirty years ago. Finding this podcast finally provided me with some insight into hEDS/MCAS/HIT and continues to help me find ways to manage these complex conditions.

As a registered dietitian nutritionist who works with a variety of patients including those with EDS/HSD (you can find me on the ESD Society website), I find this podcast to be a helpful resource for them! It is also extremely helpful for myself as someone with the condition. It's also important for my patients to know that there are clinicians and scientists out there who care and who are working hard to uncover the best pathway forward for EDS/HSD patients. Thank you to Dr. Bluestein for bringing everyone together on this podcast.

Bendy Bodies is an amazing podcast! I’ve been listening since the beginning. I especially enjoyed the interviews with Dr Chopra. He has so many hacks he loves to share! If you have EDS or another type of hypermobility disorder, be informed- this is your go-to source for EDS and all its comorbidities.

I have learned so much about myself from listening to this podcast. I tell everyone I know with EDS and other comorbidities about this show. Thank you for creating this content.

Love this podcasts, especially the episodes with Dr. Chopra! So informative! I recommend it to my own patients for education.