How neuroinflammation, dopamine disruption, and mast cell activation may be driving cravings, anxiety, and “willpower” struggles - especially in EDS, MCAS, and POTS
A physician-written guide to navigating medical care, advocating for yourself, and building a supportive care team with hypermobile Ehlers-Danlos Syndrome
A 2025 Frontiers in Neurology review reveals how EDS affects the brain, nervous system, and emotional regulation - and why your symptoms are not “just stress”
An evidence-informed guide to benefits, risks, and special considerations for EDS, POTS, and MCAS
How nervous system inflammation may drive symptoms in Ehlers-Danlos syndromes, POTS, and MCAS—and what to consider before escalating medications.
A large cohort study finds significantly higher rates of hypermobile Ehlers-Danlos Syndrome and hypermobility spectrum disorder, with important implications for diagnosis and care.
New research on health-related quality of life, diagnostic delays, comorbidities, and aging with hypermobility
Exploring Dysautonomia, Autonomic Dysfunction, Mast Cell Activation, Hormonal Imbalance, and Post-Viral Drivers
Stainless Steel Water Bottles, Nickel Allergy, MCAS, Migraine, Hormone Sensitivity & Dysautonomia: A Clinical Review
What this portrayal teaches about dynamic disability, mobility aids, and Ehlers-Danlos Syndromes
Lessons from the Metrodora Closure for EDS, POTS, and Complex Chronic Illness
How hormonal changes during perimenopause can worsen pain, dysautonomia, and joint instability in women with EDS and hypermobility
A private space for us to converse and connect
Insights from a Physician Who Is Also a Patient
What they really mean - and why they come up so often in Ehlers-Danlos Syndromes and related conditions
Why This Matters for Patients With Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorder, and Other Complex Conditions
