Dr. Halverson discusses his research on the diagnostic odyssey and clinician-associated trauma on EDS. He highlights the challenges faced by patients, including the antagonistic relationship with healthcare professionals and the impact of self-doubt. Dr. Halverson emphasizes the importance of findi…
In this episode of the Bendy Bodies Podcast, a multidimensional approach to EDS and HSD care is discussed with guest, Dacre Knight, MD. Dr. Knight discusses his background and the multidisciplinary clinic at Mayo Clinic for hypermobility syndromes. He explains the use of echocardiograms and lab te…
In this episode of the Bendy Bodies Podcast, gastrointestinal problems in EDS (Ehlers-Danlos Syndromes) is discussed with guest, Leonard Weinstock, MD. Dr. Leonard Weinstock discusses the connection between inflammation and restless leg syndrome, the prevalence of gastrointestinal symptoms in EDS p…
In this episode, Dr. Linda Bluestein interviews Dr. Brianna Cardenas, a physician's assistant and certified athletic trainer, about inequality in EDS healthcare, the importance of diversity, and inclusion in healthcare. They discuss the impact of medical racism and the need for better care for marg…
Dr. Linda Bluestein interviews Dr. Julie Robinson-Smith about jaw pain and temporomandibular disorders (TMD). They discuss the difference between TMD and TMJ, the importance of understanding TMD for everyone, and the prevalence of jaw joint problems in the general population. They also explore how …
In this episode, YOUR guest is Patricia Stott, DPT , physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain managem...
In this Bendy Bodies podcast episode, guest host Kate Colbert interviews Dr. Linda Bluestein about the evolution of her hypermobility EDS podcast (Ehlers-Danlos Syndromes). They discuss Dr. Bluestein's career trajectory, her transition from aspiring dancer to anesthesiologist to EDS expert, and he…
The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...
Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to fin...
Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becom...
Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part s...
Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered e...
Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH). Both can be impactful and are frequently missed. ...
Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging. Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a compan...
Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson wa...