Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural O...
*Please note that I misspoke during the introduction saying ME/CSF rather than ME/CFS. "CSF" is pretty hard wired in my brain after years and years as an anesthesiologist. Thank you for your understanding. Dr. Tania Dempse...
In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast , founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein em...
In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional res...
In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to dev...
This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (…
In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about decoding brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfu…
In this episode, Dr. Linda Bluestein interviews Professor Tiffany Lee about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace an…
In this episode, Dr. Linda Bluestein and Jennifer Milner discuss the intersection of hypermobility and disordered eating in dance with their guest, Josh Spell. They explore the prevalence of eating disorders in dancers and the impact of social media and diet culture on body image. They also discuss…
In this episode, Dr. Amanda Cassil discusses the unfair EDS journey. She covers the importance of self-advocacy in healthcare and provides strategies for effectively communicating with healthcare providers. She emphasizes the need for patients to slow down, regulate their nervous systems, and appr…
The Bendy Bodies with the Hypermobility MD podcast episode unfolds a substantive conversation among esteemed healthcare professionals actively engaged in a comprehensive initiative centered around Mast Cell Activation Syndrome (MCAS), Dysautonomia, and Hypermobility Spectrum Disorders (HSD). This m…
Dr. Halverson discusses his research on the diagnostic odyssey and clinician-associated trauma on EDS. He highlights the challenges faced by patients, including the antagonistic relationship with healthcare professionals and the impact of self-doubt. Dr. Halverson emphasizes the importance of findi…
In this episode of the Bendy Bodies Podcast, a multidimensional approach to EDS and HSD care is discussed with guest, Dacre Knight, MD. Dr. Knight discusses his background and the multidisciplinary clinic at Mayo Clinic for hypermobility syndromes. He explains the use of echocardiograms and lab te…
In this episode of the Bendy Bodies Podcast, gastrointestinal problems in EDS (Ehlers-Danlos Syndromes) is discussed with guest, Leonard Weinstock, MD. Dr. Leonard Weinstock discusses the connection between inflammation and restless leg syndrome, the prevalence of gastrointestinal symptoms in EDS p…
In this episode, Dr. Linda Bluestein interviews Dr. Brianna Cardenas, a physician's assistant and certified athletic trainer, about inequality in EDS healthcare, the importance of diversity, and inclusion in healthcare. They discuss the impact of medical racism and the need for better care for marg…
Dr. Linda Bluestein interviews Dr. Julie Robinson-Smith about jaw pain and temporomandibular disorders (TMD). They discuss the difference between TMD and TMJ, the importance of understanding TMD for everyone, and the prevalence of jaw joint problems in the general population. They also explore how …
In this episode, YOUR guest is Patricia Stott, DPT , physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain managem...
In this Bendy Bodies podcast episode, guest host Kate Colbert interviews Dr. Linda Bluestein about the evolution of her hypermobility EDS podcast (Ehlers-Danlos Syndromes). They discuss Dr. Bluestein's career trajectory, her transition from aspiring dancer to anesthesiologist to EDS expert, and he…
The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...
Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to fin...
Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becom...
Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part s...
Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered e...
Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH). Both can be impactful and are frequently missed. ...