In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testostero…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein to explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural…
In "My Life With EDS", a personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, whic…
In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. F…
In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the imp…
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own healt…
In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, au…
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disord…
Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to...
Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the ...
Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural O...
*Please note that I misspoke during the introduction saying ME/CSF rather than ME/CFS. "CSF" is pretty hard wired in my brain after years and years as an anesthesiologist. Thank you for your understanding. Dr. Tania Dempse...
In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast , founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein em...
In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional res...
In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to dev...
This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (…
In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about decoding brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfu…
In this episode, Dr. Linda Bluestein interviews Professor Tiffany Lee about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace an…
In this episode, Dr. Linda Bluestein and Jennifer Milner discuss the intersection of hypermobility and disordered eating in dance with their guest, Josh Spell. They explore the prevalence of eating disorders in dancers and the impact of social media and diet culture on body image. They also discuss…
In this episode, Dr. Amanda Cassil discusses the unfair EDS journey. She covers the importance of self-advocacy in healthcare and provides strategies for effectively communicating with healthcare providers. She emphasizes the need for patients to slow down, regulate their nervous systems, and appr…
The Bendy Bodies with the Hypermobility MD podcast episode unfolds a substantive conversation among esteemed healthcare professionals actively engaged in a comprehensive initiative centered around Mast Cell Activation Syndrome (MCAS), Dysautonomia, and Hypermobility Spectrum Disorders (HSD). This m…
Dr. Halverson discusses his research on the diagnostic odyssey and clinician-associated trauma on EDS. He highlights the challenges faced by patients, including the antagonistic relationship with healthcare professionals and the impact of self-doubt. Dr. Halverson emphasizes the importance of findi…
In this episode of the Bendy Bodies Podcast, a multidimensional approach to EDS and HSD care is discussed with guest, Dacre Knight, MD. Dr. Knight discusses his background and the multidisciplinary clinic at Mayo Clinic for hypermobility syndromes. He explains the use of echocardiograms and lab te…