What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about…
On today’s episode of @bendy_bodies, ME/CFS expert, Dr. Yellman shares a simple but powerful tip for navigating complex medical appointments: bring objective data. 📋 Whether it’s changes in your ability to work, study, move, or concentrate—concrete before-and-after examples can help your provider stay focused on what’s really changed, instead of…
What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion…
On the latest episode of @bendy_bodies, Dr. Theoharides explains why elevated tryptase levels don't necessarily correlate with symptom severity or treatment outcomes in Mast Cell Activation Syndrome (MCAS). He also shares his approach to using the code for mast cell activation, unspecified (D89.40). 💬 Have you experienced challenges with MCAS…
What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the…
On today’s episode of @bendy_bodies, we explore the pros and cons of an official EDS diagnosis. A diagnosis can lead to better medical care, access to specialists, and proper treatment plans. But on the flip side, it can also come with insurance challenges, stigma, and difficulty getting life or disability…
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces,…
A good physical therapist is worth their weight in gold for hypermobile patients. No amount of fancy treatments can replace the long-term benefits of PT. It's like dating. You might not find the right PT on the first try but keep trying!
"Without healthy connective tissue, we have no health." Organs may not stay in their proper place, disrupting cellular communication, and causing widespread health issues.
Dr. Watto, cohost of the popular podcast, Curbsiders, explains the role of an internist in your care on Episode 133 of the Bendy Bodies Podcast. It is recommended to get a PCP (primary care provider) BEFORE you think need one because they can help you with acute (and chronic problems)…
On today's episode of @bendy_bodies with Dr. Petra Klinge, we explore the clinical presentation of TCS as well as best practices for recovery after surgery—and some of them might surprise you! 😲 Dr. Klinge, a world renowned neurosurgeon, is known for her work on occult tethered cord (where the spinal…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience…
Stabilizing mast cells is key to reducing brain fog and fatigue. I focus on immune stabilization more than just histamine control, which doesn’t work for everyone. Check out the full episode for more tips.
Dr. Casperson teaches us why bladder pain is so frequently misdiagnosed and what might be going on instead.
💬 How to Talk About Pain & Intimacy in Relationships 🛑 Struggling with painful sex? Here’s how to have an open, honest conversation with your partner about alternative intimacy and managing discomfort. 💡 In this clip, we explore: ✔️ Why painful sex is more common than you think ✔️ How…
Dr. Watto always begins his popular podcast, the Curbsiders, with a pun. On he was interviewed on the Bendy Bodies podcast, Dr. Watto shares a couple of puns about joint hypermobility. They might make you smile!
🚨 PGAD: The Hidden Nightmare No One Talks About ⚡ Persistent Genital Arousal Disorder (PGAD) is NOT a good thing. It’s a painful, debilitating condition where the nervous system misfires, causing constant, unwanted sensations. 💡 In this clip, we cover: ✔️ The neurological causes of PGAD – it’s NOT psychological!…
Patients with brain fog often have hypersensitivity to noise, light, and even fragrances. Many can’t go to malls because store fragrances trigger discomfort.
🔥 Testosterone for Women? Here’s What You Need to Know! 🧬 Testosterone is NOT just a male hormone! Dr Irwin Goldstein and Sue Goldstein break down how testosterone therapy can help women regain their libido, energy, and sexual function. 💡 In this clip, we explore: ✔️ The vast differences between…
🚨 Why EVERY Woman Needs a Pelvic Floor Physical Therapist (Before It’s a Problem!) 🏋️♀️ Pelvic floor therapy isn’t just for postpartum recovery—it’s essential for lifelong health! Dr. Kelly Casperson explains why every woman should see a pelvic floor PT before issues arise. 💡 In this clip, learn: ✔️ The…
A guy at the FDA literally said, "What do we need a bunch of horny women walking around for?" Meanwhile, Viagra was approved instantly. The bias is real.
✨ Have you ever felt dismissed or rushed in a doctor’s office? Share your experiences below. ⬇️ 🎥 Today on @bendy_bodies: What are doctors missing when treating chronic illness? According to Dr. David Kaufman, one of the biggest gaps in care for chronic and complex illness patients is the lack…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic…
Brain fog feels like thinking through a fog—a sluggish, fatigued mental state. Even simple activities like watching TV or following conversations can be exhausting. Resting in a dark room helps but doesn’t fully fix the problem.