I’m opening up about something personal on today’s episode of @bendy_bodies; I used to have severe kinesiophobia—a deep fear of movement—because I would get injured doing the smallest things. 😣 For those of us with Ehlers-Danlos Syndromes (especially hEDS), POTS, MCAS, or hypermobility disorders, movement can feel risky. But avoiding…
What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one…
In today’s episode of @bendy_bodies, integrative pediatrician Dr. Pejman Katiraei explains why the increase in autism diagnoses isn’t just due to better testing. He explores potential root causes—including environmental stressors, immune system imbalances, mast cell activation (MCAS), and the body’s deeper responses to modern life. This is a powerful, nuanced…
What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many…
In today’s episode of @bendy_bodies, Isabel Ramirez-Burnett shares the emotional weight of living with a connective tissue disorder like Ehlers-Danlos Syndrome (EDS) and the added challenge of being told your symptoms are psychosomatic—by both doctors and family members. For many living with EDS, Hypermobility Spectrum Disorders (HSD), or ME/CFS (Myalgic…
What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at…
⚡ What if your patient wasn’t "just anxious" — but actually living with an undiagnosed connective tissue disorder? On today’s episode of @bendy_bodies, Dr. Audrey Kershaw shares how she approaches patients who show subtle (but serious) signs of conditions like Ehlers-Danlos Syndromes (EDS) or HSD, mast cell activation syndrome (MCAS),…
What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients…
🌍 Did you know there’s a growing conversation around the link between hypermobile Ehlers-Danlos syndrome (hEDS) and transgender or gender-diverse identities? Recent research suggests that neurodivergence (especially autism and ADHD), connective tissue disorders [like EDS and hypermobility spectrum disorders (HSD)], and gender diversity may intersect in fascinating ways. What are…
What if the very things you do to feel or look better are quietly making you feel worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation,…
On today’s episode of @bendy_bodies, therapist couple Melissa Dickinson and Tom Query get real about what it takes to build a strong, successful relationship while living with EDS (Ehlers-Danlos Syndrome) and neurodivergence. 💬💕 From open communication to adapting daily life, they share the tools that help them stay connected—and the…
What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about…
On today’s episode of @bendy_bodies, ME/CFS expert, Dr. Yellman shares a simple but powerful tip for navigating complex medical appointments: bring objective data. 📋 Whether it’s changes in your ability to work, study, move, or concentrate—concrete before-and-after examples can help your provider stay focused on what’s really changed, instead of…
What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion…
On the latest episode of @bendy_bodies, Dr. Theoharides explains why elevated tryptase levels don't necessarily correlate with symptom severity or treatment outcomes in Mast Cell Activation Syndrome (MCAS). He also shares his approach to using the code for mast cell activation, unspecified (D89.40). 💬 Have you experienced challenges with MCAS…
What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the…
On today’s episode of @bendy_bodies, we explore the pros and cons of an official EDS diagnosis. A diagnosis can lead to better medical care, access to specialists, and proper treatment plans. But on the flip side, it can also come with insurance challenges, stigma, and difficulty getting life or disability…
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces,…
A good physical therapist is worth their weight in gold for hypermobile patients. No amount of fancy treatments can replace the long-term benefits of PT. It's like dating. You might not find the right PT on the first try but keep trying!
"Without healthy connective tissue, we have no health." Organs may not stay in their proper place, disrupting cellular communication, and causing widespread health issues.
Dr. Watto, cohost of the popular podcast, Curbsiders, explains the role of an internist in your care on Episode 133 of the Bendy Bodies Podcast. It is recommended to get a PCP (primary care provider) BEFORE you think need one because they can help you with acute (and chronic problems)…
On today's episode of @bendy_bodies with Dr. Petra Klinge, we explore the clinical presentation of TCS as well as best practices for recovery after surgery—and some of them might surprise you! 😲 Dr. Klinge, a world renowned neurosurgeon, is known for her work on occult tethered cord (where the spinal…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience…
Stabilizing mast cells is key to reducing brain fog and fatigue. I focus on immune stabilization more than just histamine control, which doesn’t work for everyone. Check out the full episode for more tips.