In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the…
In this clip, returning @bendy_bodies guest Dr. Pradeep Chopra explains how gum fragility, frequent cavities, and even dental crowding can all be linked to connective tissue disorders like EDS. If you've ever wondered why your dental problems don't seem to match your hygiene habits—or why your gums bleed so easily—this…
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes)…
Watch full episode here: https://youtu.be/Nu8pPnkNVps 🧠 "Pain is what you think." Sounds oversimplified, right? But as Adriaan Louw, PT, PhD, shares on today’s episode of @bendy_bodies, there’s a powerful truth behind that idea. Pain is complex - and it doesn’t always mean tissue damage. Your brain plays a huge role…
In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with world-renowned pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down…
When I was getting ready to open my medical practice for EDS and HSD patients back in 2017, I was filled with both excitement and fear. Starting anything new is daunting—but starting a practice for people with conditions like Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD), which are so…
On today’s episode of @bendy_bodies,, I answer one of the most common questions I get: “How do I know if a provider is the right fit for me?” Whether you’re navigating hypermobility, Ehlers-Danlos Syndromes (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), or another complex condition, finding…
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase),…
On today’s episode of @bendy_bodies,, I answer one of the most common questions I get: “How do I know if a provider is the right fit for me?” Whether you’re navigating hypermobility, Ehlers-Danlos Syndromes (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), or another complex condition, finding…
In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to…
🧠💩 "You gotta poop." That’s the blunt but essential starting point in treating gastroparesis (delayed stomach empyting), according to Dr. Zachary Spiritos (@drzacspiritos) — and I have to agree. On today’s episode of @bendy_bodies, we dive into the elegant but complex pathophysiology behind gastroparesis, a condition commonly seen in patients…
Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood…
Voice, breathing, swallowing, and cough issues are far more common in people with Ehlers-Danlos Syndrome (EDS) than many realize — but too often, they’re overlooked. In today's episode of @bendy_bodies, Mayo Clinic speech-language pathologist Stacey Menton shares how patients with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder (HSD) often go unseen…
Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms…
In this clip, Dr. Theoharis Theoharides (@dr.theoharides) shares why it’s better to say mast cell activation rather than mast cell activation syndrome - because not everyone has elevated tryptase, and too many people are dismissed because of it. Don’t let a normal lab result be the reason you’re sent home…
What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction? In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they…
We’re on The Road to 2026 - a global initiative sponsored by @ehlers.danlos, working toward an update to the 2017 International Classification of EDS. That 2017 publication was a major milestone. It shaped how we understand and diagnose hEDS and HSD - but we’ve learned so much since then. This…
You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose…
On today’s episode of @bendy_bodies, Dr. Eva Nagy explains how Breast Implant Illness (BII) can look a lot like hEDS (hypermobile Ehlers-Danlos Syndrome), HSD (Hypermobility Spectrum Disorders), POTS (Postural Orthostatic Tachycardia Syndrome), MCAS (Mast Cell Activation Syndrome), and other systemic disorders. Here’s what you’ll learn: 💡 Common signs of BII…
What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII). Together, they uncover…
Do you have chronic pain "down there"? Is intercourse painful? Do you have difficulty wearing tight pants or sitting? On today’s episode of @bendy_bodies, Dr. Andrew T. Goldstein (@andrewtgoldstein and @the.cvvd) dives deep into vestibulectomy—a surgical option that’s often misunderstood in the world of chronic pain. Here’s what you need…
What if the pain you’ve been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in…
On last week’s episode of @bendy_bodies, Dr. Victor Montori (@patientrevolution) shared why we need to stop blaming “noncompliant” patients or “burned out” doctors — and start looking at the system making it impossible to thrive. 🐦 When someone can no longer show up — whether it’s a clinician or a…
What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on…