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Patient Stories Episodes

Nov. 2, 2023

77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost …

Episode 77 covers neurosurgical insights for EDS Patients. Dr. Paolo Bolognese, a neurosurgeon specializing in EDS and related conditions, shares his journey and expertise in this conversation. He discusses the evaluation and diagnosis of EDS and craniovertebral instability, highlighting the import…

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Oct. 12, 2023

75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, …

In this episode, YOUR guest is Patricia Stott, DPT , physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain managem...

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Oct. 5, 2023

74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert

In this Bendy Bodies podcast episode, guest host Kate Colbert interviews Dr. Linda Bluestein about the evolution of her hypermobility EDS podcast (Ehlers-Danlos Syndromes). They discuss Dr. Bluestein's career trajectory, her transition from aspiring dancer to anesthesiologist to EDS expert, and he…

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Aug. 31, 2023

73. Understanding Lower Extremity Pain with Pradeep Chopra, MD

The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...

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Aug. 17, 2023

72. Examining Upper Extremity Pain with Pradeep Chopra, MD

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pa...

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July 20, 2023

71. Examining Head, Spine, and Chest Pain with Pradeep Chopra, MD

Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to fin...

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June 29, 2023

70. Examining Abdominal Pain with Pradeep Chopra, MD

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS). Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting ...

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May 25, 2023

68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Vict…

Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part s...

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May 11, 2023

67. Destigmatizing Eating Disorders with Dr. Jennifer Gaudiani

Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered e...

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April 6, 2023

65. Finding Balance with Jenelle Manzi

Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging. Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a compan...

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March 9, 2023

63. Shining Your Light with Gigi Robinson

Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson wa...

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Feb. 9, 2023

61. Getting Back Up Again with Keeya Steel

Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life. How do you find balance? Ho...

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Nov. 3, 2022

55. Cultivating Resiliency with Jazz Bynum

As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”. Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syn...

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May 26, 2022

50. Pushing Limits with Jen Crane, DPT

In this Bendy Bodies podcast episode, we discuss circus athletes with EDS (Ehlers-Danlos Syndromes) and hypermobility with guest, Jen Crane, DPT. As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly...

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May 12, 2022

49. Pioneering a Path with Bonnie Moore Southgate

In this Bendy Bodies podcast episode, we talk with Bonnie Moore Southgate., a professional ballerina with EDS (Ehlers-Danlos Syndromes) and hypermobility. As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist ...

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