What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk.
From the scar tissue no one warned you about to the medication that works—but doctors won’t prescribe—it’s all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders.
And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved.
This episode doesn’t just give answers. It reveals what questions you should have been asking all along.
Takeaways:
This one over-the-counter product might be behind your chronic eye issues—and no one’s talking about it.
Considerations and cautions for taking cromolyn
A “safe” eye ointment led to lasting damage—here’s why.
Doctors say no to pain meds before surgery… but do they know the full risk?
A tick bite and subsequent food allergy changes everything—even your shampoo.
00:00 Introduction and Personal Anecdote
00:38 Welcome to the Bendy Bodies Podcast
01:50 Listener Feedback and Reviews
03:30 Eye Problems and EDS
11:13 MCAS and Multiple Chemical Sensitivity
21:58 Alpha-Gal Syndrome
34:58 Stigma and Advocacy in EDS
Reference Links:
EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk
EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc
EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns
EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA
EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0
EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4
EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0
EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ
EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY
EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k
Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book,
Holistic Pain Relief as well as her other favorites at Dr. Bluestein’s Amazon Store
https://amzn.to/3RAjueJ
https://www.amazon.com/shop/hypermobilitymd
Toxicant Induced Loss of Tolerance (TILT) Tests
https://tiltresearch.org/self-assessment/
TILT Resources
https://tiltresearch.org/resources/
Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed
https://pubmed.ncbi.nlm.nih.gov/38535497/
Food Compatibility List: https://www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf
https://www.twoalphagals.com/
https://www.veganmed.org/
YouTube Playlist on Moving with EDS and HSD
https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f
Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority!
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