Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective.
Takeaways
Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.
Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.
Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.
Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.
Treatment approaches for EDS are discussed.
Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.
The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.
Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.
📺 Other Helpful Videos For You
97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert:
https://youtu.be/Ebm0R8dvkD8?si=q7f1Sb1VqeFM43_k
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD:
https://youtu.be/Fu3mzL2rg4U?si=7D6FiQbn1W80erTG
86. The Unfair EDS Journey with Amanda Cassil, PhD:
https://youtu.be/_KiZf5100p4?si=9dk9yuA_xDtVyDKW
Chapters:
00:00 Introduction and Celebration of 100 Episodes
25:52 Understanding and Empathizing with Patients' Struggles
36:40 The Top Three Concerns Among EDS Patients
41:20 The Most Effective Treatment Approaches for EDS
44:23 The Role of Mast Cell Activation Syndrome (MCAS)
52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team
01:03:16 The Future and Goals of the Bendy Bodies Podcast:
1:05:21 Improving Quality of Care
01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at www.hypermobilitymd.com
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at www.bendybodiespodcast.com
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
www.sciencedirect.com/science/article/abs/pii/S0161589014000546
#MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode
-
Keep up to date:
YouTube: www.youtube.com/@bendybodiespodcast
Twitter: www.twitter.com/BluesteinLinda
LinkedIn: www.linkedin.com/in/hypermobilitymd
Facebook: www.facebook.com/BendyBodiesPodcast
Blog: www.hypermobilitymd.com/blog
-
⭐⭐⭐ About Bendy Bodies Podcast ⭐⭐⭐
Are you affectionately known as 'Gumby' among your friends and family? Being 'double-jointed' isn't just a quirky trait—it can lead to a host of problems throughout the body, even if you were once 'bendy' but aren't anymore. Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), often go unrecognized by doctors, causing life-altering symptoms such as pain, frequent injuries, joints 'giving way,' fatigue, gastrointestinal issues, and insomnia.
Welcome to the Bendy Bodies podcast, hosted by EDS expert, Dr. Linda Bluestein, MD. Join us as we delve into topics relevant to anyone experiencing symptomatic joint hypermobility. From insightful discussions with specialists boasting diverse expertise to practical tips for optimizing your hypermobile health, we're here to empower you on your journey to wellness.
