Have you ever had your symptoms dismissed as “just anxiety” or “all in your head”?

In today’s episode of @bendy_bodies, Isabel Ramirez-Burnett shares the emotional weight of living with a connective tissue disorder like Ehlers-Danlos Syndrome (EDS) and the added challenge of being told your symptoms are psychosomatic—by both doctors and family members.

For many living with EDS, Hypermobility Spectrum Disorders (HSD), or ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), getting a diagnosis can take years. And while a diagnosis isn’t a cure, it can offer something powerful: validation. A name. A reason. Something to point to when your body doesn’t follow the rules—and no one believes you.

👇 Tell us:
Did getting a diagnosis change how others treated you—or how you treated yourself? Share your story in the comments.

#BendyBodies #EhlersDanlosSyndrome #EDS #HSD #MEcfs #ChronicFatigueSyndrome #ConnectiveTissueDisorder #InvisibleIllness #MedicalGaslighting #PsychosomaticMisdiagnosis #ChronicPain #DiagnosisMatters #ChronicIllnessAwareness #RareDisease #DisabilityAwareness #BendyBulletin #HypermobilitySyndrome #PatientAdvocacy #BelievePatients #HealthcareBias #ChronicFatigue #MentalHealthAndChronicIllness #BendyPodcast #LivingWithEDS

📌 Medical Advice Disclaimer: This information is for educational purposes only and is not a substitute for professional medical advice. Always consult your doctor before making any healthcare decisions.