In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss.
Takeaways:
Why Beighton scoring alone doesn’t cut it for diagnosing EDS
The truth about MTHFR variants and their link to EDS
The overlap between SVT, POTS, and when to worry
What to ask your doctor if you’re not sure they "get" dysautonomia
A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most
Chapters:
00:00 Introduction and Podcast Overview
01:47 Exploring EDS and Related Conditions
03:28 Listener Questions: Diagnosing and Managing EDS
16:31 Understanding Dysautonomia and POTS
26:43 Sponsor Message and Podcast Support
27:41 MTHFR Polymorphisms and Hypermobile EDS
32:54 Celiac Disease and EDS Connection
38:11 Lipedema and Hypermobile EDS
References:
The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein
https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com
hEDS Diagnostic Criteria Checklist
Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/
Hope for Hypermobility
Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307
Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd
Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/
Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/
Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/
https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/
LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/
LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/
Want more Dr. Linda Bluestein, MD?
Website: https://www.hypermobilitymd.com/.
YouTube: youtube.com/@bendybodiespodcast
Instagram: https://www.instagram.com/hypermobilitymd/
Facebook: https://www.facebook.com/BendyBodiesPodcast
X: https://twitter.com/BluesteinLinda
LinkedIn: https://www.linkedin.com/in/hypermobilitymd/
Newsletter: https://hypermobilitymd.substack.com/
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Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
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