Researchers like Dr Cortney Gensemer from the Norris Lab at MUSC are beginning to uncover clues that hypermobile Ehlers-Danlos Syndrome (hEDS) may not only be linked to mast cell activation, but also to immune dysregulation. This could explain why the symptoms are so widespread and why the condition is so multifaceted.
Right now, there is still no biomarker for hypermobile Ehlers-Danlos Syndrome. But Dr Gensemer's work has identified abnormalities in certain proteins that may eventually change how we understand hEDS.
These conditions are incredibly complex (but NOT hopeless), and diagnosing them properly requires time and specialized training. That is why it is so important to get this information into the hands of internists and family practice doctors who are often the first line of care.
💬 Question for you: What is one thing you wish your doctor better understood about Ehlers-Danlos Syndromes (EDS) or Hypermobility Spectrum Disorders (HSD)?
#BendyBodies #EhlersDanlosSyndrome #HypermobilitySpectrumDisorders #POTS #MCAS #Hypermobility #ChronicIllness #hEDS #ImmuneSystem
📌 Medical Advice Disclaimer: This content is for educational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider for personalized medical care.
