Is a diagnosis necessary?
If you suspect you have a hypermobility disorder such as hypermobile Ehlers-Danlos syndrome, hypermobility spectrum disorder or Marfan syndrome, you may wonder if it’s worth the cost and effort to seek a diagnosis. Finding a doctor, pursuing testing which may or may not definitively prove something, and spending hundreds or thousands of dollars on lab work, may seem overwhelming.
And if there’s no cure for disorders such as hEDS, is it worth it?
Dr. Linda Bluestein, hypermobility and pain management specialist, discusses this in our latest Bendy Bit. Hear what she has to say on the subject as she talks through pros and cons of this road. Since May is EDS Awareness month, this tricky question is worth a deeper dive.
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