Living with a hypermobility spectrum disorder—or caring for someone who is—can be overwhelming, confusing, and at times, isolating. Within the Bendy Bodies community, we believe that access to accurate, compassionate, and practical information is essential for anyone navigating this complex path. Our Resources section is a thoughtfully curated hub designed to help you feel more informed, better equipped, and deeply supported—whether you’re newly diagnosed, still searching for answers, or well along your journey.
The guides below include contributions from Dr. Linda Bluestein, alongside insights from medical experts, patient advocates, and individuals with lived experience. Each resource is crafted to demystify hypermobility, support clearer communication with healthcare providers, and empower you to advocate for yourself or others with confidence and clarity.
If you have suggestions for future resources or found something here helpful, we’d love to hear from you. Bendy Bodies is more than a podcast—it’s a community. We invite you to leave a comment on this page!
⸻
Red Flags in Hypermobility Disorders
Not sure if your symptoms—or those of a loved one—are part of a bigger picture? This guide outlines clinical “red flags” that may suggest an underlying connective tissue disorder such as hypermobile Ehlers-Danlos syndrome (hEDS) or another hypermobility spectrum disorder (HSD). It’s a great starting point if you’re wondering, “Is this something I should explore further?” Perfect for patients and providers alike.
⸻
Symptomatic Joint Hypermobility: A Patient & Provider Guide
A comprehensive overview of symptomatic joint hypermobility — written in plain, approachable language. A walkthrough of common symptoms, coexisting conditions, and steps to take after a diagnosis or suspected diagnosis. Whether you’re a patient trying to understand your body, or a clinician seeking clarity on best practices, this resource aims to bridge the gap between science and lived experience.
⸻
Feeling lost in the weeds of clinical jargon? This page offers a simplified version of diagnostic criteria for hEDS and related conditions, presented as an easy-to-understand checklist. While not a substitute for formal evaluation, it’s a valuable tool for recognizing patterns, organizing your health history, and preparing for medical appointments.