The Bendy Bulletin

A private space for us to converse and connect

Insights from a Physician Who Is Also a Patient

What they really mean - and why they come up so often in Ehlers-Danlos Syndromes and related conditions

Why This Matters for Patients With Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorder, and Other Complex Conditions

And what That Means for People With EDS, MCAS, and POTS

Thoughtful Support for People with Hypermobility, EDS, HSD, Chronic Pain, Dysautonomia, MCAS, ME/CFS, and Long COVID

Welcome back to The Bendy Bulletin.

And why this matters for people with EDS, HSD, chronic pain, dysautonomia, MCAS, ME/CFS and long COVID

Why it matters for people with EDS, HSD, and dysautonomia.

Why Testosterone Matters in EDS & HSD

What Every EDS and HSD Patient Should Know

A clinical overview of ketamine’s mechanisms, potential benefits, and key precautions for patients with complex hypermobility and autonomic disorders.

Dysautonomia Awareness Month Edition

A major win for patients with invisible illnesses.

Why shoppers with EDS/HSD need to be extra careful on Walmart’s marketplace

Exploring the Importance of Mast Cell Disease Awareness for Both Patients and Clinicians

Understanding the link between hypermobility, POTS, and autonomic dysfunction

Why People with Hypermobile EDS Experience Chronic Head Pain, and How to Find Effective Relief

How breaches of dignity, poor communication, and systemic challenges erode patient trust - and what we can do to rebuild it

Dr. Linda Bluestein on EoE, MALS, SIBO, vascular compressions, and mast cells