
Project Manager/ Patient Advocate
Kasi Grosvenor is a Project Manager at the Lipedema Foundation, bringing more than two decades of experience in project management and communications. She holds an MBA from Capella University.
Kasi lives with Lipedema, Mast Cell Activation Syndrome (including Hereditary Alpha Tryptasemia), POTS, and hypermobility. Drawing on both her professional background and lived experience, she is passionate about amplifying the patient voice, raising awareness of Lipedema, and advancing understanding of its overlap with related conditions. Her work focuses on supporting research, education, and outreach to improve recognition and care for patients.
You have been told it is just weight. Just diet. Just effort.For millions of women with lipedema, that is not just wrong. It is decades of unnecessary suffering.In this episode of Bendy Bodies, I sit down with Kasi Grosvenor and Jesse Cochrane from the Lipedema Foundation to pull back the c…