Discussing Your Feedback: Pain, Autism & hEDS Diagnostic Criteria | Office Hours (Ep 158)
In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone’s pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person’s experience. Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community.
Takeaways
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Why pain is always real—even when labeled “non-structural”
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How mast cell research intersects with autism without erasing identity
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Why a hEDS diagnosis matters for some patients—but not for all
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What the upcoming 2026 hEDS criteria changes could mean for the community
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How listener feedback shapes the future of Bendy Bodies
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