Patient Stories Episodes

In this episode, Dr. Linda Bluestein interviews Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' They discuss the inspiration behind the book and its organization. They also explore why bendy …

In this episode, Dr. Linda Bluestein interviews Dr. Brianna Cardenas, a physician's assistant and certified athletic trainer, about inequality in EDS healthcare, the importance of diversity, and inclusion in healthcare. They discuss the impact of medical racism and the need …

Episode 77 covers neurosurgical insights for EDS Patients. Dr. Paolo Bolognese, a neurosurgeon specializing in EDS and related conditions, shares his journey and expertise in this conversation. He discusses the evaluation and diagnosis of EDS and craniovertebral instability, highlighting the …

In this episode, YOUR guest is Patricia Stott, DPT , physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain managem...

In this Bendy Bodies podcast episode, guest host Kate Colbert interviews Dr. Linda Bluestein about the evolution of her hypermobility EDS podcast (Ehlers-Danlos Syndromes). They discuss Dr. Bluestein's career trajectory, her transition from aspiring dancer to anesthesiologist to EDS expert, …

The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pa...

Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to fin...

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS). Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting ...

Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part s...

Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered e...

Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging. Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a compan...

Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson …

Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life. How do you find balance? Ho...

As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”. Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syn...