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Sept. 22, 2022

52. Unlocking Jaw Pain with Leslie Russek, DPT, PhD

52. Unlocking Jaw Pain with Leslie Russek, DPT, PhD

In this Bendy Bodies podcast episode, we discuss jaw pain in EDS (Ehlers-Danlos Syndromes) and hypermobility with guest, Leslie Russek, DPT, PhD. 

Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention.

Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic.

Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems.

We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain.

Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD.

With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain.

Visit this webpage for handouts and more information about Dr. Russek.

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#JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

Transcript

Episodes have been transcribed to improve the accessibility of this information. Our best attempts have been made to ensure accuracy,  however, if you discover a possible error please notify us at info@bendybodies.org


00:00
Leslie Russek, DPT
Yeah. And the clicking, it's a good example. So the clicking usually occurs when the disc is slipping in and out, and that's separate from a clunk, which happens if you actually dislocate your jaw and it gets stuck, usually stuck open. But the clicking, even if it's not painful, every time it's clicking, you're pulling on those elastic bands behind the disc and they're getting stretched out, and that is going to be progressive. And so if you can avoid that, if you can recapture the disc, pull it back where it belongs and then not open so wide so that it can rest where it belongs, then the tissues that hold the disc in place can hopefully go back to their normal position, and that can prevent long term problems. So that's a good example of taking care of yourself, even if it's not painful at this time. 

01:10
Jennifer Milner
Welcome back to the Bendy Bodies podcast, where we strive to improve well being, enhance performance, and optimize career longevity for every bendy body. This is co host Jennifer Milner, here with the hypermobility MD linda Bluestein. 

01:26
Dr. Linda Bluestein
We are so glad you are here to learn tips for living your best bendy life. This information is for educational purposes only and is not a substitute for medical advice. 

01:36
Jennifer Milner
Our guest today is Leslie Russick, DPT, PhD, professor Emeritus at Clarkson University and practicing orthopedic physical therapist specializing in hypermobility syndrome, fibromyalgia, headaches, and chronic pain. Dr. Russick. Welcome to bendy bodies. 

01:53
Leslie Russek, DPT
Thank you for inviting me. I'm pleased to be here. 

01:56
Dr. Linda Bluestein
We're thrilled to chat with you. 

01:57
Jennifer Milner
For sure, absolutely. So for our listeners who may not be familiar with you and your work, could you just tell us a little bit about yourself? 

02:05
Leslie Russek, DPT
Yeah, so I am a physical therapist, but most of my career I've been a physical therapy professor at Clarkson University, where I have taught musculoskeletal physical therapy. But I continue I'm semi retired now from the university, but I continue to teach content related to hypermobility, chronic pain and headaches and TMJ problems. I also treat patients part time, as you noted, but I only treat patients who are hypermobile. Before hypermobility was commonly diagnosed, my specialty was headaches and TMJ problems, and that's how I got a lot of my hypermobile patients, because headaches and TMJ problems are so common in that population. 

02:49
Jennifer Milner
Okay, so that brings up a good point. So we talk about you treat TMJ, you treat hypermobility. What exactly is TMJ? And why should people with hypermobility be concerned about it? 

03:00
Leslie Russek, DPT
So technically, TMJ refers to the temporal mandibular joint, and we each have two of them. So everybody has two TMJs. The problem, the painful condition, is more accurately called temporal mandibular disorder, or TMD, but a lot of patients know it as TMJ. So people will come in and say, I have TMJ. It's like, I hope you have two of them, but you may also have TMD, which is the pain. So it's a common problem in hypermobility, although it certainly occurs in other people as well. But it's important because we use our jaw for talking and for chewing. And when your jaw is not working properly, that's a significant functional problem for us. People with hypermobility are particularly vulnerable to TMJ problems for a couple of reasons. For one, we have stretchy joints and so the joint can move too far. And when it moves too far, it can sublux or dislocate and that can damage the joint tissue especially. 

04:00
Leslie Russek, DPT
So the TMJ has a disc or a meniscus in it. Kind of like we have a meniscus in our knee and that disc slides as we open the jaw. And there are some elastic fibers that hold the disc backwards and that pull it back when we close our mouth. So we open our mouth and the disc slides forward so the jaw can move and we close our mouth and the disc gets pulled back by those elastic fibers. And people who are hypermobile probably have elastic fibers that are too stretchy and they get overstretched. And sometimes the disc doesn't come back where it's supposed to because those elastic fibers aren't pulling back. So that's a second reason why people who are hypermobile have a lot of TMD. Another reason is that people with hypermobility tend to have poor body awareness or proprioception. That a lot of the nerves that tell us where we are in space are in the joints. 

04:51
Leslie Russek, DPT
And if your joint is too stretchy, those nerves aren't giving you the correct feedback. And although the jaw joint itself hasn't been tested for proprioception, we know other joints in the body have proprioceptive deficits. That is, we don't know where our body is. And so it's pretty safe to assume that we don't know where our jaw is either. And that means those two jaw joints may not work in synchrony. So one side may go forward before the other and that can damage the tissue and also the muscles will lack coordination. We call that motor control. And because we have the two sides of our jaws and they have to work in a coordinated fashion, if those muscles aren't coordinated properly, if you don't know where your jaw is, then you're much more vulnerable to having problems. So those are all reasons why people with hypermobility are much more vulnerable to TMD than the average person. 

05:43
Dr. Linda Bluestein
Okay, and jaw pain and TMD, are those pretty much synonymous? Or can people have jaw pain from other causes? And if so, what would be some of the other causes of jaw pain? 

05:57
Leslie Russek, DPT
So that's a great question. No, they're not synonymous. So you can have a temporal mandibular disorder that's not painful. So the disc that I mentioned before, it can sublux or dislocate. If it subluxes, your jaw tends to snap or crack. It goes pop because the disc is popping in and out when you open and close your jaw. And that can be painful or non painful. So some people will have a clicking jaw but it's not painful. So they don't have pain. But they do have a disorder, the disc is not performing correctly. Some people may also have stiffness in the jaw. So after an injury, even hypermobile people can get a stiff joint. And so one side of the jaw, once the acute phase is over, it will be stiff, but it may no longer be painful. But if one side is stiff, the jaw will move abnormally and that'll cause problems potentially on the other side. 

06:51
Leslie Russek, DPT
So it is possible to have problems without pain. And pain without damage to the joint could be due to trigger points in the muscles or even trigger points in some other muscles that don't connect to the jaw. So it's possible to have disorder or pain separately. But most of the time it does happen together. But some of the structures, like I mentioned, a muscle in the neck, the sternoclidomastoid muscle, which we affectionately call the SCM, it refers pain into the jaw. And so people who have neck problems or neck instability where that muscle develops a trigger point, can have problems in their jaw. And trigger points are a common source of pain in general and particularly with people who are hypermobile because we tend to tense up our muscles to try to hold ourselves together. So we're using our muscles incorrectly. And so muscles can develop trigger points which are small areas of spasm that refer pain someplace else. 

07:52
Leslie Russek, DPT
And so this muscle here, for example, it refers pain to the ear and the jaw, the forehead and the back of the head. And sometimes people will come in with jaw pain being their primary symptom even if the problem is in the neck muscle. So trigger points in other places can refer to the jaw. Another muscle that's in the jaw, it's called the lateral terrogoid. It actually controls that disc motion. If it has a trigger point, it'll also cause jaw pain. So you could have pain in your temporal mendibular joint, but the joint itself could be normal, the pain could be referred from those trigger points. So there are a lot of different structures that can actually cause the pain. So the trigger points, the joint has a joint capsule which can be inflamed the disc. Those retrodiscal tissues are very highly innervated and vascularized, so they can become inflamed and painful. 

08:50
Leslie Russek, DPT
So there are a lot of different structures that can refer pain to the jaw. It's also important to know that some of the jaw structures can refer pain in other places, particularly causing toothaches. So some of the jaw muscles, your masseter and your temporalis when they form trigger points, particularly for people who clench or grind, that can cause toothache. And I've had patients who have actually had teeth pulled out because they thought there was a problem with their teeth. But the problem was actually the jaw muscles. And so it's important to know that a problem in the TMJ can also refer to the teeth and cause a toothache and to recognize that there might not be a problem in the tooth at all. 

09:31
Dr. Linda Bluestein
Wow. So jaw pain is pretty complicated and can involve a lot of different causes and can also problems in the jaw can refer to different areas. So we know that people often have difficulty accessing people like yourself or other experts in this area in terms of determining what contributors a person might have to their jaw pain. Are there any ways that a person might be able to sort that out themselves? 

10:00
Leslie Russek, DPT
Yeah, a little bit of detective work. So I recommend to all my hypermobile patients that they become familiar with trigger point patterns because trigger point pain is so common. And there's some really good books on the market about trigger points where you would see they show a picture of the pain pattern and so they may show a picture of pain in the jaw or a picture of showing pain in the teeth and people can look through those pictures and go yeah, I have pain there. And then they can read about the muscle and sometimes they can poke at it and go OOH, wow, yeah, that hurts, I didn't even know that hurt. And then they can read about or learn about some of the contributing factors. And I always teach my patients this because it's often not hard to make pain go away. The trick is to make it so it doesn't come back. 

10:46
Leslie Russek, DPT
And so for example, if this neck muscle is causing the jaw pain, we have to look at well, why is that muscle aggravated? Well, a bad posture, a forward head posture or tipping your head too much can aggravate that muscle. So by learning about trigger points, they can learn about a lot of the sources of jaw pain. The disc itself is a little bit trickier that if the disc is clicking and painful, they probably need to get some advice from a professional. And physical therapists should be trained to treat the TMJ. For some reason the TMJ has been considered different than all the rest of the joints in the body and some physical therapists aren't trained to treat it. And we really should be able to because it is a joint like all the others. It's a synovial joint. It happens to have a disc, it happens to be in the head, but otherwise it responds to physical therapy treatment as well as any other joint. 

11:45
Leslie Russek, DPT
And so physical therapists can help. Some dentists are knowledgeable about TMJ problems and can be helpful, particularly for somebody who clenches and grinds. They may need a dental appliance or something that they put on their teeth to prevent them from clenching. And some speech therapists are knowledgeable about temporal mandibular joint problems because obviously you have to use your jaw to be able to talk. So those are some sources, both of things that a person could look up themselves, but also professionals that they might be able to turn to for some guidance. 

12:19
Jennifer Milner
That's really helpful because a lot of times people with hypermobility, as I'm sure you've experienced, feel like they do have to be their own detective a little bit, as you mentioned before. And I think the jaw is just something that we don't naturally think of and start talking about when we have hypermobility. And people have so many other hypermobility issues, there are so many common comorbidities that go along with being hypermobile. Should people with hypermobility be thinking about the jaw? Like, should they be concerned about it and how they use it and how it aligns if they don't have jaw pain? 

12:50
Leslie Russek, DPT
So it's always a matter of prioritizing for a hypermobile person that if they have other issues that are more important, they need to focus on those other issues. So, for example, if they have cervical instability, the jaw is less important than managing the cervical instability. Or if they can't walk because of hip pain. But if they are able to consider overall wellness, they're not too busy putting out fires, then absolutely. The more you know to take care of your jaw, just like all of the joints, we need to take care of our joints. We need to have good body mechanics, joint protection strategies, often some basic exercising for coordination can be helpful. Knowing how to recognize signs early before they get to be big problems, can help us to prevent or avoid injury in all of our joints. And so the jaw is no different. 

13:45
Leslie Russek, DPT
So things like having good jaw habits, not clenching or grinding your teeth, not chewing gum, making sure your tongue is on the roof of your mouth, that there's space between your back teeth relaxing so you don't hold tension in your jaw or your neck. Not opening your mouth too wide for dental work or for toothbrushing or for flossing. Those are all habits that a person should have to be able to take care of their jaw. And one that's less intuitive is nose breathing. That it turns out that nose breathing is really important. So nose versus mouth breathing is really important for health in a lot of ways that I won't go into, but for the jaw in particular, that the shape of the jaw will actually change if you are a habitual mouth breather. And so if you do breathe through your mouth, especially at nighttime when you're sleeping, that's something you need to work on for health in general, but also for your jaw. 

14:48
Leslie Russek, DPT
So definitely there are things that we can do to take care of our jaw, just like we can take care of our other joints. And if you're not busy putting out fires that are more important, thinking about how you can take care of your body is always a good thing. 

15:03
Jennifer Milner
Well, and I was thinking about what you said earlier about you could have clicking in your jaw and not really have pain with it. And so many people with hypermobility will say, well I have these clicks and pops and it doesn't bother me, it doesn't hurt. So I ignore those and I deal with the other things. But as we commonly remind people, those clicks and pops mean something. So if all the other fires are out, it's great to turn a little attention to those clicking and popping joints and see what's going on. And that includes your jaw. 

15:34
Leslie Russek, DPT
Yeah, and the clicking. It's a good example. So the clicking usually occurs when the disc is slipping in and out and that's separate from a clunk, which happens if you actually dislocate your jaw and it gets stuck, usually stuck open. But the clicking, even if it's not painful, every time it's clicking, you're pulling on those elastic bands behind the disc and they're getting stretched out. And that is going to be progressive. And so if you can avoid that, if you can recapture the disc, pull it back where it belongs and then not open so wide so that it can rest where it belongs, then the tissues that hold the disc in place can hopefully go back to their normal position and that can prevent long term problems. So that's a good example of taking care of yourself, even if it's not painful at this time. 

16:32
Dr. Linda Bluestein
And I was curious to ask about the mouth breathing because I think that's something that probably a lot of people experience. I know I do. And I have sitting right here actually my daytime mouth guard. My nighttime mouth guard. I've got a lot of the things, I've been in a lot of treatment for TMD. And I'm curious how a person can train themselves not to mouth breathe. 

16:59
Leslie Russek, DPT
So it's complicated. But there are a couple of strategies. First, figuring out why you breathe through your mouth. So if it'sinus congestion, then you need to be able to clear your sinus congestion. Sinus congestion can be a medical issue if you have allergies, for example, it can also be secondary to some of these trigger points. So the sternoclitomastoid muscle can cause sinus congestion because the nerves that go to that muscle also go to the sinuses. So sometimes mechanically fixing your alignment can help with the sinuses. There are some breathing strategies that are designed to help clear the sinuses. So there's a whole science of breathing called buteko breathing. And they have a procedure that you can do to open up the sinuses so you can breathe through your nose. And I've recommended it to patients and gotten feedback from them that it is helpful. So first you have to be able to breathe through your nose and then for some people, just being more aware of it during the daytime so that they become a nose breather during the daytime can help. 

18:08
Leslie Russek, DPT
At nighttime it is possible to actually tape your mouth shut, but you'd want to do that with medical guidance to make sure that you're not at risk of any other problems. So kind of depends on why you're a mouth breather, how to address it, and it can be a multiple step process. 

18:27
Dr. Linda Bluestein
Interesting. Okay, and what are some other practical steps that a person who has symptomatic hypermobility, what they could take in order to help reduce their jaw pain? 

18:37
Leslie Russek, DPT
Well, working on good posture, the jaw is connected to the neck. And so if you have slouched posture, it's going to pull the jaw out of alignment and cause tension around the joint. Relaxation, so you're not storing tension in your jaw is important. So general relaxation strategies such as slow diaphragmatic, breathing, mindfulness meditation, things like that, can help to calm the nervous system so that we don't store so much tension in the jaw. I would say those probably are the two things for people who aren't symptomatic now, that they're good in general for a lot of reasons, not just the jaw. And so everybody who's hypermobile should probably be working or should address posture and muscle tension or muscle guarding. For people who have jaw pain already, there are some other things that you can do. So there are some facial self massage techniques that you can do for the jaw muscles. 

19:41
Leslie Russek, DPT
Even for some of the muscles inside the jaw, you can massage those. A warm compress can be helpful either to the joint or the muscles for people who have pain right in the jaw, especially if that pain is associated with a disc problem. So popping and clicking or the joint getting stuck, some of the topical analgesics can be helpful. So something that has anti inflammatory medication, because the joint is right under the skin there. And so a topical medication can get into the joint and can decrease the inflammation a little bit. Some people would benefit from a dental appliance like you mentioned to prevent clenching and grinding. If you do get an appliance, make sure the dentist understands that you have temporal mendibular problems, because some appliances are designed for other purposes, for example, to help adjust the teeth, and they can actually make temporal mandibular problems worse, that some of the appliances pull the jaw forward, which stretches out that disc and the elastic tissue. 

20:49
Leslie Russek, DPT
So making sure that your dentist knows that you have temporal mendibular joint pain and that the appliance will be helpful, not harmful to that. Don't use the drugstore version that you boil in hot water and you mold to your own teeth. That tends to make things worse. So there are a lot of things that people can do that are just part of wellness and then some things that are specific to the jaw. 

21:14
Dr. Linda Bluestein
Excellent. And I know, I've heard you speak in a number of other settings and you have some great handouts. And I know one of the handouts that you had included a Mnemonic Rttpb that was specifically about resting jaw position. Could you explain that a little bit? 

21:33
Leslie Russek, DPT
Yeah, absolutely. I wish they thought of something a little catchier. So R stands for relax. Stop what you're doing. Allow the tension in your body to be released. And for somebody who tends to store tension, take a deep breath in exhale and try to let yourself relax. But having good posture. So don't collapse, but let your body as though you're a marionette and you're hanging from a string, but you're hanging in good alignment. And the second T, or the T, is for teeth apart. Your back teeth should never touch except when you're chewing. So they shouldn't spend more than a couple of minutes per day touching. So if you find your back teeth are touching, then even if you're not pressing and clenching, you're holding your jaw tight. And people who are hypermobile tend to do this because if we don't have good body awareness, the only way we know where we are is to press the teeth together. 

22:31
Leslie Russek, DPT
And so if your teeth tend to be touching, say the word Emma. And when you finish the word Emma, you'll have a little bit of what we call free space between your molars, a couple of millimeters of space between your molars. So your teeth should be slightly apart. And if you're a habitual clencher, it may take weeks for that to become a normal position for you. The second T refers tongue on the roof of your mouth behind your upper teeth. Some people have tension in their tongue muscle and hold the tongue at the bottom of the mouth. And particularly if you're a mouth breather, you have to have your tongue on the bottom so you can pull your air in. And the tongue down there pulls on all sorts of structures around the jaw, the teeth and the neck. And so the tongue should be on the roof of the mouth, the clucking position. 

23:24
Leslie Russek, DPT
And so you're going the P is for posture. So imagining two strings, one at the top of the head and one at the sternum or breastbone. So not pulling yourself back into posture, but lifting yourself so that your body hangs in good alignment. And then the B for breathing, diaphragmatic and nose breathing. So belly breathing, not chest breathing and breathing through your nose. So the Rtppb is a good mnemonic to go through a couple of times a day to just say, relax. Am I relaxed. Okay. Teeth. Are my teeth touching? Okay? Where's my tongue? How am I breathing? And how's my posture? And so it's a good checklist of wellness for your jaw. 

24:11
Jennifer Milner
That's great. And I think our listeners all over the place actually probably went through it as you were describing it and talking about it. I could feel myself doing some of those things. And those are nice, easy little check ins you can do along the way for everybody to try to make sure that they have good jaw health. So, going a little bit deeper than that, who should try the Rokabado six by six exercise program for jaw pain? And how is that best done? 

24:37
Leslie Russek, DPT
So, Rokabado is a very well respected TMJ specialist who developed what he calls the Six by six exercise program for TMJ. And in general, I recommend people do it with guidance of a health professional, but it is pretty safe to do. And for people who are hypermobile, don't do six repetitions six times per day because that tends to be much too much for hypermobile tissue structures. But it includes six exercises and some of these are going to sound similar. So tongue clucks, holding the tongue on the roof of your mouth and doing diaphragmatic breathing, six breaths. And that's definitely good. That's similar to our Rttpb. Number two is controlled TMJ rotation with the tongue on the roof of your mouth. And keeping the tongue on your roof of your mouth limits how far you can open the jaw. So the jaw, the first part of jaw opening, there's a spin phase and a slide phase. 

25:38
Leslie Russek, DPT
And this is just the spin phase. So it prevents the jaw from sliding forward, prevents that disc from being slid forward. And so holding the tongue in the roof of your mouth and just a small range of opening. Some people will benefit from putting their fingertips on their jaw to feel for symmetry or looking in a mirror to look for symmetry, that if you're wiggling side to side or going off to one side, then your coordination is not good. And either feeling with your fingertips or looking at the mirror can help you develop that proprioception and motor control to be symmetric. The third one is the one that I'm most concerned about people doing without supervision. It's a strengthening exercise or a stabilization exercise. So with your teeth apart, pushing gently in all directions. So right, left, down, up. For people who are hypermobile, definitely be very gentle in this. 

26:34
Leslie Russek, DPT
I recommend pushing with one or two fingers only and it should not be painful. If it is painful, don't do it. Get professional advice. The next exercise is a neck exercise called cervical nodding, where you tip, just the tip the top of your head forward. And this is a good exercise for a lot of people who tend to have forward head. That when we have forward head, the head extends on the neck. And so we're reversing that to very gently tuck that one again. If it causes any discomfort or symptoms should be avoided. People who have severe cervical instability, sometimes that exercise can aggravate the instability. Next exercise is called lower cervical retraction, where often our forward head is like this. Now we're working on the lower part to straighten it out a little bit, not pulling on the head this time, but just straightening out the lower part of the neck again, it should be pain free. 

27:35
Leslie Russek, DPT
And then the last one is shoulder blades, pulling your shoulder blades back so that you're not hunched forward. So these exercises help with the posture, help with the motor control of the jaw and the positioning of the tongue. None of them should be painful. Do them lightly or gently. And for my patients who have TMJ problems, I recommend that they just do one set of six per day, and definitely not to do the six sets of six per day as the original Rokobot of Six by Six recommends. 

28:10
Jennifer Milner
That is extremely helpful. Thank you for going through those. I know that with a lot of hypermobile people, we have that tendency to push right and to try to achieve a certain feeling or try to achieve a certain level of fatigue. And so much of the time, as you said, with our proprioception issues, and so much more, less is more. And so one finger pain free range of motion, really small, really subtle, is so key. 

28:38
Leslie Russek, DPT
Yeah. And I always have a progression where the first step is always body awareness. You have to know where you are. It's hard to exercise correctly if you don't know where you are. And people who are hypermobile tend to sort of fling their body around so that they can feel where they are. So they fling to the end of the range. It's like, yes, I can feel that I've moved. But that's often a range where we shouldn't go. So, proprioception or body awareness first with posture, that you have to be aligned properly before exercises are safe. If you're not in good alignment and you do exercises, you could damage the joints. So posture, body awareness, and then motor control, making sure that you have the control to do the movement correctly. And only then should you do any strengthening or stabilization exercise. What goes wrong with a lot of patients who are hypermobile in physical therapy, or if they go to the gym, is that they try to jump right into doing strengthening exercises or even stabilization, like core stabilization. 

29:46
Leslie Russek, DPT
But if you don't have good posture, body awareness and motor control, then the exercises could do you more harm than good. And that's particularly true in the jaw. 

29:56
Jennifer Milner
We hear some version of that so many times that before strengthening, so many other things have to come. Like you said, posture, body awareness, what does that proprioception? How good is our proprioception? How much are we feeling? It the body alignment before we can even start to do strengthening. And that's so important. So if people have tried to do some of these things on their own, if somebody is struggling with jaw pain and if their self management strategies are ineffective or suboptimal, how can they find someone to work with? 

30:28
Leslie Russek, DPT
Yeah, it can be tricky that there are not enough healthcare providers in general who are trained to manage patients with hypermobility. And we're. Certainly working to train as many people as possible. There are a lot of efforts to train more healthcare providers. If you're looking for a physical therapist, you can look to find one who may have knowledge about hypermobility. The Ehlers Don Low Society has a healthcare provider website where people who are knowledgeable about hypermobility can register. And so you can look to see if there's somebody trained in your area and also looking for somebody with TMJ training, because not every physical therapist, even if they're knowledgeable about hypermobility, will necessarily be TMD trained. Although so many patients who are hypermobile have TMJ problems, that most providers who are knowledgeable about hypermobility will be knowledgeable about the TMD. For dentists asking if they're knowledgeable about TMD, you can ask if they're knowledgeable about hypermobile, but there's probably not a lot of training there yet. 

31:45
Dr. Linda Bluestein
Those are great suggestions. And was there anything that we should have asked you that you would like to add that you can think of? And also can you let people know where they can find out more about your research and your work that you've been doing? 

32:01
Leslie Russek, DPT
Yeah. So one other thing to mention is just that jaw pain is a frequent comorbidity with some other common hypermobility problems. So headaches in general, migraines, although sometimes what's diagnosed as a migraine is really trigger point pain and cervical instability, particularly upper cervical instability. And so I often have patients who come to me with one of those complaints and when I ask them, do you have problems with your jaw? They're like, oh, yeah. And sometimes the headaches and migraines or the instability issues overwhelm the jaw in terms of importance, but always checking to see if the jaw is a problem, and then ringing in the ears as well. So tinnitus, or tinnitus, it's pronounced both ways, is a really common problem, and it's often associated with both jaw problems and problems with some of those same muscles. And so people who have tinnitus can often manage, or learn to manage that through musculoskeletal approaches. 

33:08
Leslie Russek, DPT
So if you tell your doctor you have ringing in your ears, they're going to prescribe medication which just treats the symptom, it doesn't prevent the cause. And that's actually true for headache medications as well, that they treat the symptom of the pain, they don't treat the cause of the pain. And so for people who have ringing in their ears to see a physical therapist and see if there are issues in their neck or in their jaw that may be contributing to that. So those are some other comorbidities that are often linked with TMD. People can find out more about me at my web page. So that's webspace. Clarkson. Clarkson.edu and I have a website specifically for hypermobility, and I run a Hypermobility 101 lecture series, which anybody's welcome to attend via Zoom, where I go through a whole series of issues that are important to people with hypermobility, like how do you pick an appropriate exercise program or progress exercises? 

34:15
Leslie Russek, DPT
What are some of the causes of headaches? There are a whole bunch of additional causes of headaches that are more common in people who are hypermobile. So people are welcome to view those lecture recordings or look at the slides on my website. And from my website, I also have a page that has handouts that I provide for patients. And so a lot of my handouts are there, and anybody can download those as well. 

34:42
Jennifer Milner
That is a wealth of information, and personally, I can't wait to go to your website and check out some of those things. So thank you. That's really helpful. For people who may not have access to a specialist in their own area. That's very generous of you to share all of that. 

34:58
Dr. Linda Bluestein
Definitely we will have those links in the show notes, so if people are interested in learning more and accessing those handouts and the Hypermobility 101 series, that sounds amazing, which I'm sure lots of people will be interested in that they can definitely visit the show notes and get some more information there. 

35:17
Leslie Russek, DPT
Yeah, and I think you'll have the link to there's a lecture specifically on headaches and jaw pain, and I also have a handout specifically on jaw pain. I have another headache on headache trigger points, so I think you'll be including a link to those as well. 

35:33
Dr. Linda Bluestein
Great. 

35:35
Jennifer Milner
Absolutely. Thank you. Well, you have been listening to Bendy Bodies with the Hypermobility MD, and our guest today is Dr. Leslie Russick, DPT, PhD, Professor Emeritus at Clarkson University and practicing orthopedic physical therapist specializing in hypermobile syndrome, fibromyalgia, headaches, and chronic pain. Dr. Russick, thank you so much for sharing your time with us today and being on our podcast. 

36:00
Leslie Russek, DPT
It's been a pleasure talking with you. Thank you for having me. 

36:04
Dr. Linda Bluestein
We loved it. Our audience is going to be so happy with what they learned and going to find this really super valuable, I'm sure. 

36:12
Jennifer Milner
Absolutely. We are very grateful. If you love what you learned, follow the Bendy Bodies podcast to avoid missing feature episodes. Screenshot this episode. Tagging us in your story so we can connect. Our website is WW bendybodies.org and follow us on Instagram at bendy underscore bodies. Leaving a review, following the Benibodies podcast and sharing the podcast helps spread the word about hypermobilities and associated conditions. This information is not intended to diagnose, treat, cure, or prevent any disease. The information shared is for educational purposes only and is not a substitute for medical advice, diagnosis, or treatment. Please refer to your local qualified health practitioner for all medical concerns. We'll catch you next time on the Bendibodies podcast. 

Leslie N. RussekProfile Photo

Leslie N. Russek

Author

Leslie Russek, PT, DPT, PhD, OCS, is Professor Emeritus of Physical Therapy at Clarkson University. She is an Orthopaedic Certified Specialist physical therapist with over 30 years of clinical practice experience with 25 years working with patients with hypermobile Ehlers-Danlos Syndrome. Her research and clinical interests include hypermobile EDS, fibromyalgia, headaches and chronic pain. Prof. Russek has published and presented nationally and internationally on HSD/hEDS, headaches, and chronic pain management. She is currently co-facilitating the Allied Health Professionals ECHO Telementoring series for EDS in North America and co-leading the Allied Health Working Group of the International Consortium of Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders; she was also a member of the 2021-2022 National Academy of Sciences, Engineering and Medicine Committee on Selected Heritable Connective Tissue Disorders and Disability. Although Prof. Russek has retired from academic teaching, she continues to treat patients and lecture to health care providers and patient groups.