
Thank you so much, Linda, and the entire podcast team. I dip in and out of the Bendy Bodies Podcast series, and so much of the content resonates deeply with me. The podcasts have not only helped me feel less alone, but have also significantly improved my understanding of how to better manage my hEDS and associated conditions, as well as navigate and access the healthcare support I need.
As someone living with hEDS and complex co-occurring conditions, I especially value the depth, compassion, and expertise brought to each episode. I also work within this field professionally and am currently a postgraduate researcher focusing on how to reduce diagnostic delays for autistic people with EDS/HSD. I have a particular interest in medical gaslighting, delayed diagnosis, and the impact of medical invalidation, so many of the discussions you facilitate feel incredibly important and meaningful.
I’ve also had the privilege of presenting at several Ehlers-Danlos Society conferences, and I truly appreciate the way your podcast amplifies patient voices alongside clinical expertise. Your work is making a genuine difference to so many people in the community.
I always find the discussions around MALS especially interesting, as I underwent MALS surgery myself in March 2025, so hearing these experiences and expert conversations feels particularly personal and validating.
Thank you again for your passion, generosity, knowledge, and the incredible work you do through this podcast. It is such a valuable resource for the EDS and chronic illness community.
May 9, 2026 by Sarah Clark on This Website